“I’ve been able to pick up the phone and get people to call me back because of the CNBC name… I’ve met so many people who haven’t had any of those advantages. We just thought that’s unfair. We have to figure out how to use this platform to help others” – Becky Quick

• 1:25 – Celebrating 100 episodes of the n-Lorem Patient Empowerment Program podcast
• 6:40 – Welcome Becky Quick; CNBC Anchor and mother of a Kaylie
• 10:35 – Becky’s journalistic origins and path
• 16:13 – Launching CNBC Cures and the need to help others facing rare diseases
• 23:00 – Navigating life with the challenges caused by rare disease
• 29:03 – Kaylie’s SYNGAP1 diagnostic odyssey
• 42:10 – Tending with the loss of control
• 43:56 – Non-verbal does not mean lacking understanding
• 48:30 – SYNGAP1 explained
• 59:01 – Hope is powerful

Becky Quick is co-anchor of “Squawk Box” (M-F, 6AM-9AM ET). She also leads CNBC Cures, a multi-platform initiative dedicated to showcasing the voices, research, and progress surrounding rare diseases.

Quick is known for her hard-hitting interviews and profiles of some of the world’s richest and most influential investors, including Warren Buffett, Bill Gates, Alan Greenspan, T. Boone Pickens, Jamie Dimon, Charlie Munger and many others. She also has interviewed three U.S. presidents and has hosted panels at some of the most prestigious conferences in the world such as the Microsoft CEO Conference, Fortune’s Most Powerful Women’s Conference and the Allen & Co. Sun Valley Media Conference.

Quick was formerly anchor of the nationally syndicated “On the Money,” which was produced by CNBC, and also authored a regular column for Fortune magazine. Prior to becoming an anchor, Quick covered the Wall Street beat for CNBC as part of the network’s partnership with Dow Jones.

Before joining CNBC in February 2001, Quick covered various beats for The Wall Street Journal, including retail, e-commerce and the Internet. She also played a crucial role in the launch of The Wall Street Journal Online, while serving as the site’s International news editor.

Quick graduated from Rutgers University in New Brunswick, N.J. She serves on the board of the Economic Club of New York and previously served on the board of The Robert Wood Johnson University Hospital.

Follow her on X @beckyquick.

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We hope that you join us on this journey to discover, develop and provide individualized antisense medicines for free for life for nano-rare patients. The ultimate personalized medicine approach – for free, for life.