Days to the Event
About the Event
Please consider joining us for the 2026 n-Lorem Nano-rare Patient Colloquium. Since our first gathering, this event has grown into a unique forum where patients and families, physicians, researchers, industry leaders, partners, donors, and supporters come together to advance a shared mission: bringing hope and help to nano-rare patients and their loved ones.
Over two days, we will reflect on the progress made across the nano-rare community, explore the latest developments in personalized ASO medicine, and discuss the opportunities and challenges that lie ahead. Attendees will hear directly from patient families as they share their experiences navigating life with a nano-rare disease, from physicians who administer and support treatments, from partners and supporters whose commitment helps make n-Lorem’s mission possible, and more!
Through presentations, panel discussions, and community conversations, we will come together to celebrate progress, share knowledge, foster new connections, and strengthen the community and mission that empowers nano-rare patients to hope for more and dream bigger.
Register as an in-person or virtual attendee using the white button above and stay tuned, as the agenda will be announced at a later date.
Questions? Please reach out to [email protected]
Host & Venue

This Colloquium is hosted by Biogen

Biogen is a founding donor of n-Lorem and a leading global biotechnology company that has pioneered multiple breakthrough innovations. Biogen is advancing a pipeline of potential novel therapies across neurology, specialized immunology and rare diseases and remains acutely focused on its purpose of serving humanity through science while advancing a healthier, more sustainable and equitable world.
www.biogen.com
Boston Marriott Cambridge
50 Broadway
Cambridge, MA 02142
Sponsor
Would you or your organization like to support the 2026 Nano-rare Patient Colloquium? Email [email protected]

Reception & Art Auction
Please join us after Day 1 of the 2026 Nano-rare Patient Colloquium, for a Scientific Poster Session, followed by an evening of mingling, music, small bites, and drinks. Connect with community members, enjoy meaningful conversations, and place a bid on unique art pieces created by n-Lorem pioneer patients. We look forward to welcoming you with open arms. Children are welcome to attend. See you there!
Travel
Traveling to Cambridge?

We cannot do
this alone
Together we are changing the world—
one patient at a time
We hope that you join us on this journey to discover, develop and provide individualized antisense medicines for free for life for nano-rare patients. The ultimate personalized medicine approach – for free, for life.
Follow us on social for updates on our latest efforts


