Interview

Realities of the Nano-rare: Episode 1

with Sarah Glass, Ph.D.

April 8, 2026

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A nano rare diagnosis does not just affect one person. It reshapes an entire family.

Realities of the Nano-rare takes you inside that experience. Hear directly from n-Lorem COO and nano rare mom Sarah Glass as she joins host Stan Crooke to share the day to day realities of raising her son Ethan and the ripple effects on their whole family, including his older sister.

Discover how they have adapted, what they have learned, and how they have built a new normal.

Tune in to this powerful two part series featuring both Sarah and Oliver Glass.

Watch on YouTube:

Dr. Sarah Glass is a molecular geneticist and biotechnology leader dedicated to transforming the future of precision medicine for the nano-rare disease community. As Chief Operating Officer at the n-Lorem Foundation, she oversees the development and delivery of individualized antisense oligonucleotide (ASO) therapies designed specifically for patients with ultra-rare genetic mutations. Before joining n-Lorem, Dr. Glass served as Global Head of Rare Diseases at Parexel and held senior roles at Teva Pharmaceuticals and GlaxoSmithKline, where she built genomic medicine programs integrating human genetics into clinical development. Motivated by her personal journey as the parent of a child with a nano-rare condition, Dr. Glass combines scientific expertise with deep empathy for the patients and families she serves. Her leadership has helped establish n-Lorem as a global innovator, proving that individualized medicines can be both scientifically rigorous and profoundly humane.

Credits:

Hosted by: Dr. Stan Crooke.
Videographer: Jon Magnuson of Mighty One Productions.
Producers: Kira Dineen, Jon Magnuson, Andrew Serrano, Nate Velasco, and Amy Williford.

More from n-Lorem:

See what else we are up to on XInstagramFacebookLinkedInYouTube and our website, nlorem.org. If you enjoy this episode, please rate and review us, as it helps others find our podcast. Questions/inquiries can be sent to [email protected].

This episode is made possible thanks to our sponsors:

Listen to our next interview:

Sharing Hope Through Storytelling and Connection with Shanna Tolbert

We cannot do
this alone

Together we are changing the world—
one patient at a time

We hope that you join us on this journey to discover, develop and provide individualized antisense medicines for free for life for nano-rare patients. The ultimate personalized medicine approach – for free, for life.

We need your support

Join us on our Corps of Discovery of the mind and heart. Help us bring hope and potential help to nano-rare patients today. For free, for life.

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