A nano rare diagnosis reshapes an entire family.
In Realizing Hope for Layken, Stan Crooke speaks with Callan Pleasant about her daughter Layken and their journey with HNRNPH2.
Callan shares the early signs, the long road to diagnosis, and what it takes to navigate care while holding onto hope. Through n-Lorem, Layken’s story is moving forward with new possibility.
Listen to the full conversation with Callan Pleasant.
Watch on YouTube:
Devoted special needs mom and passionate advocate, she brings an honest and heartfelt perspective to raising a child with complex needs. She actively supports awareness efforts and has firsthand experience navigating clinical trials, offering valuable insight into both the challenges and hope they can bring. Her voice is grounded, relatable, and rooted in fighting for better resources and outcomes for her child and others. Through sharing her journey, she encourages and connects with families walking a similar path.
Credits:
Hosted by: Dr. Stan Crooke.
Videographer: Jon Magnuson of Mighty One Productions.
Producers: Kira Dineen, Jon Magnuson, Andrew Serrano, Nate Velasco, and Amy Williford.
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We cannot do
this alone
Together we are changing the world—
one patient at a time
We hope that you join us on this journey to discover, develop and provide individualized antisense medicines for free for life for nano-rare patients. The ultimate personalized medicine approach – for free, for life.
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