2026 Nano-rare Patient Colloquium Registration

Event Details
Date: October 7-8, 2026
Location: Boston Marriott Cambridge – Cambridge, MA

Community. Commitment. Connection!

The n-Lorem Nano-rare Patient Colloquium, hosted by Biogen, is returning to the Boston area and will be held over two days – October 7 & 8 in Cambridge, Mass. Agenda and additional event details will be announced in the future. 

At this event, attendees will join nano-rare patients and their families, physicians and institutional representatives, n-Lorem leadership and team members, industry leaders, partners, donors, and supporters from across the community. We'll take a look at the progress of the Foundation's mission over the past year and host dozens of interesting community panels and presentations to continue the thoughtful discussions from our meeting last year. 

If you missed the 2025 event, all the presentations and panels are available here. 

As of May 2026, n-Lorem has received more than 440 applications for treatment and accepted over 240 patient programs. These numbers continue to support our belief that the need for personalized ASO medicines is greater than anyone anticipated. We are honored to be working on treatments for each individual patient program accepted by our Foundation, helping patients and families Hope for More and Dream Bigger! 

What we are learning today from our patients has the potential to significantly impact how we think about health and disease. We are pleased to be able to continue to share these learnings with you at the 2026 Nano-rare Patient Colloquium. 

For any questions, please email: [email protected]

Thank you to our Sponsors

Would you or your organization like to support the 2026 Nano-rare Patient Colloquium? Email [email protected]

Download Sponsor Packet

Travel

Traveling to Boston?

Download Travel Packet

We cannot do
this alone

Together we are changing the world—
one patient at a time

We hope that you join us on this journey to discover, develop and provide individualized antisense medicines for free for life for nano-rare patients. The ultimate personalized medicine approach – for free, for life.

We need your support

Join us on our Corps of Discovery of the mind and heart. Help us bring hope and potential help to nano-rare patients today. For free, for life.

Follow us on social for updates on our latest efforts