Treatment Start Date:
March 2024
Video Timeline
Milestones
May 2024
Assisted Walk
Connor walks with the help of his mom, never being able to take more than a few steps on his own
June 2024
“He’s literally walking”
For the first time, Connor is able to walk a short distance unassisted
June 2024
Improved distance
Connor walks a significantly longer distance with improvement in balance
We cannot do
this alone
Together we are changing the world—
one patient at a time
We hope that you join us on this journey to discover, develop and provide individualized antisense medicines for free for life for nano-rare patients. The ultimate personalized medicine approach – for free, for life.
Follow us on social for updates on our latest efforts
